2021 From Testing to Targeted Treatment (FT3) Annual Report

Educational resources & frameworks

Our goal is to learn from good practices and patient input to develop fit-for-purpose educational resources because we know a more informed patient leads to better outcomes. FT3 acts as a catalyst for best practices; we aggregate them and build on them through multi-stakeholder collaboration, and we make them freely available to help reduce the burden of developing new resources or making updates to existing ones.

The work started with the FT3 session ‘Visualizing the patient pathway in precision medicine: the identification of barriers and best practices across different stakeholder groups’. It was the first opportunity to gather input from over 200 people representing a broad sample of the patient and PM community.

An important theme that emerged was the importance of capturing the patient experience - what they feel and do - at different steps of the PM pathway, which has also been highlighted by FT3 contributors. Participants identified over 47 potential barriers and 24 best practice or case study examples in the co-creation group activity.

Building on the 320+ needs identified at the PEOF session in 2020, and the mapping of existing good educational resources for patients, in 2021 the Education & Awareness working group focused on the co-creation of a suite of adaptable resources, starting with a patient information needs map and a Precision Medicine Q&A Builder.

The Canvas was validated and refined by the wider patient and PM community at the Patient Engagement Open Forum that saw more than 200 participants from 31 countries around the world, over a third of which were from the patient community. It also built on learnings from Cancer of Unknown Primary (CUP) World Awareness Week - the CUP patient pathway illustrated how the Canvas could be adapted and utilized in different contexts and disease areas.

Discover the tool now >

Patient Experience and evidence

Advocacy resources and tools

In 2022, we will work on further co-creating and consolidating the key storytelling points, defining the best methods for delivery and testing the approach within the wider community.

Peer-reviewed publication highlighting the PM ecosystem challenges

The rapid progress FT3 has made in the past year supports the idea that true multi-stakeholder collaboration across the whole health system is the best way to sustainably solve access issues in PM. A peer-reviewed publication has been in the works over 2021 to bring attention to the persistent problem of fragmentation in the PM ecosystem, present the urgent need for multi-stakeholder collaboration across the whole health system as the best way to sustainably solve access issues in PM and to make a positive impact on patient outcomes & experiences. We expect a 2022 publishing date, thus providing another resource for PM advocates to use in calling for systemic change.

Enabler of Precision Medicine

Stakeholder matrix

In collaboration with Monmouth partners, FT3 carried out an interview-based survey to identify and capture the knowledge and experience of different stakeholder groups in PM, as well as determine what each stakeholder expects from their own and other stakeholder groups. The aim was to better understand how to build the accessibility conditions for PM to become a reality for patients.

Through this piece of work, a shareable ‘expectations matrix’ was created to encourage mutual understanding and to inform ongoing efforts to accelerate the implementation of PM. The hope is that by contributing to a growing evidence base and greater awareness, better access to targeted medicine can be achieved in oncology and beyond. In 2021 30 in-depth interviews were completed, with five different stakeholder types represented.

Stakeholder engagement to strengthen the influence network, enable us to deliver and to reinforce credibility

In 2021, a Stakeholder Engagement Task Force was initiated following the recommendation of the Board members during the Board meeting in December 2020. The Task Force was mandated to prioritize stakeholder outreach, together with refining membership criteria for approval. This multi-stakeholder Task Force successfully delivered:

• A six-month agile strategic outreach strategy to identify and approach appropriate experts who can complement the existing knowledge and experience of current working group members, to enhance and accelerate delivery in the three core pillars of FT3‘s program. This strategy was discussed, reviewed and approved during the Board Meeting in December 2021.
• FT3 membership criteria, including the definition of the FT3 Community of Practice. This proposal was also discussed, reviewed and approved by the FT3 Board in December 2021.

Over 35 new connections made with organizations in 2021 to support FT3’s mission and grow our community of champions:

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Strengthening FT3’s community by building engagement around key topics

Strengthening FT3’s community by building engagement around key topics

FT3 was active as part of eight key awareness days, gradually becoming a voice in the global conversation on PM topics: